"HEALTH AND THE GYPSY COMMUNITY"

 

Final Report

July 2001

 

1. Introduction

2. Pedagogic Project / Project Description

2.1 - Objectives

2.2 - Activities carried out

1– NETWORK COORDINATION AND EMPOWERMENT ACTIONS

2– SPECIFIC COURSES AND SEMINARS

2.1 – TRAINING COURSE FOR MEDIATORS PARTICIPATING IN DRUG DEPENDENCY PREVENTION PROGRAMS (SPAIN)

2.2 – TRAINING COURSES FOR FIELD PROFESSIONALS ON HEALTH CARE INTERVENTION METHODS WITH THE GYPSY POPULATION (SPAIN)

2.3 – TRAINING COURSE: "SOCIAL INTERVENTION, DRUG DEPENDENCY AND COMMUNITY HEALTH" (SPAIN)

2.4- TRAINING OF PROFESSIONALS IN INTERVENTION WITH THE GYPSY COMMUNITY IN HEALTH CARE AND DRUG DEPENDENCY (GREECE)

2.5- IN SITU TRAINING VISITS IN SOCIAL INTERVENTION AS WELL AS IN THE FIELD OF HEALTH CARE AND DRUG DEPENDENCY WITH THE GYPSY POPULATION (GREECE)

2.6- MEDIATOR TRAINING SESSIONS PREPARING THEM FOR INTERVENTION ACTIONS IN THE AREA OF DRUG DEPENDENCY AND HEALTH PROMOTION (GREECE)

2.7- MEDIATOR AND FIELD PROFESSIONAL TRAINING SESSIONS (PORTUGAL)

2.8- TRAINING SEMINAR FOR MEDIATORS AND EDUCATORS WORKING IN THE AREA OF DRUG DEPENDENCY (ITALY)

3– NATIONAL WORKING GROUPS

4– INTERNATIONAL SEMINAR IN OPORTO

5– ACTIVITIES DESIGNED TO PROVIDE A CLEARER PICTURE OF THE STATUS OF THE GYPSY POPULATION WITH RESPECT TO HEALTH, DRUG DEPENDENCY AND OTHER ASSOCIATED PROBLEMS

5.1 – INFORMATION SYSTEM ON THE EVOLUTION OF THE SITUATION OF EUROPE'S GYPSY POPULATION AS REGARDS HEALTH, DRUG DEPENDENCY AND OTHER ASSOCIATED PROBLEMS

5.2 – QUALITATIVE RESEARCH INTO THE GYPSY POPULATION'S AWARENESS, ATTITUDES AND BEHAVIOURS WITH REGARD TO HIV/AIDS

6– UPDATING THE DATA BANK ON INITIATIVES IMPLEMENTED WITH GYPSIES

6.1 - DATA BANK ON PREVENTION INITIATIVES AND DRUG DEPENDENCY AND HIV/AIDS INTERVENTION WITHIN EUROPE'S GYPSY POPULATION

7– THE ROMANO SASTIPEN DRUG DEPENDENCY PREVENTION PROGRAM AIMED AT GYPSY YOUTH

8– PRODUCTION AND DISSEMINATION OF MATERIALS

8.1 – PRODUCTION AND UPDATE OF THE WEB PAGE

8.2 – TRANSLATION INTO GREEK, ADAPTATION AND PUBLICATION OF THE BOOK: "TAKING ACTION IN THE GYPSY COMMUNITY"

8.3 – PUBLICATION OF THE "SASTIPEN" NEWSLETTER

8.4 – ADAPTATION AND TRANSLATION INTO GREEK OF THE "PREVENTION WORKSHOPS FOR GYPSY YOUTH"

8.5– OTHER EDITING OF MATERIALS AND PARTICIPATION IN PUBLICATIONS

9 –OTHER ACTIONS AIMED AT ESTABLISHING AND DISSEMINATING THE NETWORK

9.2 - TECHNICAL ASSISTANCE PROVIDED TO EUROPEAN ORGANISATIONS WORKING WITH THE GYPSY POPULATION IN THE AREA OF HEALTH AND DRUG ABUSE 

9.3 - OTHER ACTIONS AIMED AT ESTABLISHING AND DISSEMINATING THE NETWORK

3. Assessment and Conclusions / Data collected and generated

3.1 - PROGRESS MADE IN THE PROJECT, RESULTS, EFFECTS, IMPACT

 

Introduction

El This report covers initiatives implemented between May 2000 and May 2001 within the framework of the European Project: "Santé et Communauté Tsigane", financed by the European Commission, the National Drug Plan of the Spanish Home Ministry and the Town Hall of Madrid (Municipal Drug Plan) and developed by this entity in collaboration with other European organisations related to UNISAT (France) REAPN (Portugal), CNCA (Italy), KEPIT (Greece) and T3E (UK).

 

Pedagogic Project / Project Description

2.1 - Objectives

The objective that sets the stage for the activities that the Asociación Secretariado General Gitano has been developing in the field of drug dependency since 1992 focuses on the promotion of intervention in the areas of prevention and medical assistance with certain sectors of the Gypsy minority population. Awareness work with Gypsy organisations, the need to improve the situation of difficult access to treatment services facing Gypsy drug users, the need for intervention instruments adapted to our community and consolidation of the coordination and work of the Project partner organisations are the actions that have been given priority in this Project. The principal beneficiaries of these actions have been the Gypsy associations themselves as well as the mediators, professional health care workers and those responsible for public policy.

The following operational objectives form part of our Project and have guided our actions:

1- Consolidate and strengthen the "Sastipen" European Network as a forum for sharing, contact and mutual support; of knowledge and information on the situation of Europe's Gypsy community with respect to the phenomenon of drug dependency, HIV/AIDS and health in general.

2- Develop a discourse and shared know-how from elements of common interest on the Gypsy population and drug dependency, intervention methods and strategies and transfer this significant body of knowledge and experience to the Action's partners, to other drug abuse and ethnic minority networks and to public administrations and entities in other European countries where Gypsies reside.

3 - Mobilise the different social agents that intervene in drug abuse issues (field experts, institutions, etc.) as well as the Gypsy community itself with a view to developing prevention and intervention initiatives to be implemented within this sector of the population in the Project's partner countries which favour a specific approach that respects lifestyles and cultural characteristics.

4- Facilitate access that the Gypsy drug using population has to mainstream health care services.

5-  Produce, disseminate and apply prevention instruments and materials specifically tailored to the Gypsy population.

 

2.3 - Activities carried out

Summary table of activities carried out

ACTION

SITUATION

RESULTS

NETWORK COORDINATION AND EMPOWERMENT ACTIONS

Network coordination and empowerment actions

Three Network Steering Committee coordination meetings were held to deal with issues concerning the Project's internal operations, management, planning and program evaluation.
  1. Palma de Mallorca, 29,30 June and 1 July 2000 
  2. Madrid, 23, 24 February 2001 
  3. Oporto, 12 Mayo 2001

STANDING WORKING GROUPS ON THE NATIONAL LEVEL

Working groups in Spain, France, Portugal, Italy, United Kingdom and Greece

To date, consolidated groups are in place in Portugal, France, Italy and Spain. Work has commenced in United Kingdom and Greece.

Working groups involved in intervention activities with the Gypsy population are functioning actively.
 
Close to 3,000 requests for technical assistance have been answered.

SEMINARS, COURSES, WORKSHOPS AND TRAINING AND SHARING MEETINGS

Specific courses and seminars

SPAIN

  • Training courses for mediators that participate in drug dependency prevention programs.

 

  • Training of professionals in health care intervention with the Gypsy population in: Santiago de Compostela, Cuenca, Mérida, Gijón, Pamplona, Badajoz, Murcia and Valladolid (Spain)

 

  • Training course: "Social Intervention, Drug Dependency and Community Health."

GREECE

  • Participation in the training offered to social intervention professionals on intervention within the Gypsy population and on the Sastipen Network.
  • On-site training visits to intervention sites in the area of health care and drug dependency in Athens (Greece).
  • Mediator training sessions on issues related to health promotion.

 

PORTUGAL

  • Training sessions on a number of key aspects in the promotion of the Gypsy population were held.

ITALY

  • CNCA mediator training seminar for drug dependency intervention in Passo Mendola

 

Madrid, 28-29 November 2000 and Mollina (Málaga) 31 March, 1-2 April. 57 mediators participated. 
   
 

215 field professionals working with the Gypsy population were trained and Sastipen Network information was distributed to them.
Held in Madrid on 14-16 March 2001. 47 participants from 19 entities

Held in Madrid on 14-16 March 2001. 47 participants from 19 entities

 
 
Athens (Greece) 24-27 October 2000


13 mediators from Portugal, Spain and Greece (26- 28 April 2001)

25 people participated between May 2000 and May 2001

 

 

9 training sessions aimed at mediators, field professionals and entities that deal with the Gypsy population. 30 people attended

 
50 educators/mediators participated

THE INTERNATIONAL SEMINAR IN OPORTO

The Sastipen Network's most relevant trans-national exchange action

Nearly 250 participants. The magazine "Ciganos.pt" was presented and the meeting's workshop conclusions were published in the first issue

Held in Oporto (Portugal) 10-11 May 2001

INFORMATION SYSTEM ON THE EVOLUTION OF THE SITUATION OF GYPSIES IN EUROPE WITH REGARD TO DRUG DEPENDENCY AND OTHER PROBLEMS ASSOCIATED WITH GENERAL HEALTH

Development of an information and observation system on the health situation of Europe's Gypsy population

  • The different work stages have been completed
     
  • Simultaneous qualitative research is being done on attitudes, behaviours and awareness on the part of the Spanish Gypsy population as regards HIV/AIDS
The information systems has been developed and the first report of results will be made available on the WEB page

Field work completed. The final report will be presented to the Spanish National AIDS Plan in October 2001

UPKEEP OF THE DATA BANK ON INITIATIVES IMPLEMENTED WITH GYPSIES

Management of the data bank update

The process of update and contact continues with a view to further establishing the Network

Update initiatives taken this year have focused mostly on the Eastern European countries

THE GYPSY POPULATION PREVENTION PROGRAM "ROMANO SASTIPEN"

The "Romanó Sastipen" Program

The program is consolidated in Spain and in Greece

In Spain, intervention has taken place in 13 cities and collaboration has been established with an approximately equal number of Gypsy associations. 420 people benefited

In Greece, tailored materials have been distributed for the development of this Program through approximately 150 entities

PRODUCTION AND DISSEMINATION OF MATERIALS

Production of the internet WEB page

 

 

Translation into Greek and publication of the book "Actuar con la comunidad gitana" (Taking action in the Gypsy Community)

Edición de la Newsletter "Sastipen"

Translation into Greek and publication of the "Prevention Workshops for Gypsy Youth"

Drafting of the final report on Network activities to be made available at the Project's WEB page along with other relevant reports

Participation in different publications

The internet WEB page is on line and updated.

http://www.asgg.org/sastipen

 


 
October 2000

 



 
New issue

 

This material has been translated and published

 

Currently drafted and now being translated for internet display

  

  • HIV/AIDS prevention among immigrants and ethnic minorities
  •  Issue N. 14 of the publication Etudes Tsiganes focusing on health
Approximately 5,000 site visitors

 

 

 

Published and distributed to 150 entities


 
 
 
Published in 5 languages and distributed in 17 European countries

Published and distributed to 150 entities

 

 

 

OTHER ACTIONS TAKEN IN THE ESTABLISHMENT AND DISSEMINATION OF THE NETWORK

Project partner's participation in projects, workshops and meetings with other European networks and other Network establishment and dissemination actions

  • Partner's participation in different Network recognition, dissemination and promotion activities
  • Meeting of the networks organised by the European Commission
  • Participation in the European AIDS & Mobility Network meeting
  • Participation in different European projects focusing on the promotion of the Gypsy population:
  1. "Drugs and Minorities" project led by T3E (UK) and financed by the EMCDDA"
  2. The Portuguese project "Gypsy communities: representations and dynamics of exclusion and integration"
  3. The European Union project "Identifying good practices to combat discrimination against the Gypsy population"
  4. EU funded project "Targeting Roma-Gypsies in Inclusion Programmes"
  5. Portuguese Project "New Directions: socio-economic integration of ethnic minorities", an initiative of the Moura Town Hall
  6. Portuguese Project "Ser criança", an initiative of the Labour and Solidarity Ministry
  7. Spanish Project "AIDS and Mobility", an initiative of the National Aids Plan

 

  • Actions focusing on awareness of the status of Europe's Gypsy population (mostly Central and Eastern Europe) and dissemination, recognition and empowerment of Network actions
  • Contacts to increase the number of Network partners
  • Technical assistance on drug dependency and Gypsy population issues provided to European organisations.
     
  • Two training seminars on good practices in work with Gypsies in Slovakia
  • Study visits to Madrid involving those responsible for public administration in Slovakia focusing on intervention within the Gypsy community (the Sastipen Network was presented during the course of all of these actions and plans were made to incorporate these countries into the Network)
     
  • Coordination of efforts with the Council of Europe's Migration and Rom/Gypsies Division for the holding of a reflective seminar on the health status of Gypsies in Europe

 


Luxembourg, 6 June 2000

11 December 2000

Final Project report drafted in December 2000

 

 

 

 

 

 

 

 

 

 

 
 
 
Entities have been contacted in Slovakia, the Czech Republic, Bulgaria, Hungary and Germany


 
Four German organisations have been contacted

Assistance has been provided to approximately 3,000 entities throughout the Network's partner countries as well as in other European countries

60 people participated


4 visits

 



 
 
Currently being prepared 

 

1– NETWORK COORDINATION AND EMPOWERMENT ACTIONS


2– SPECIFIC COURSES AND SEMINARS

2.1 – TRAINING COURSE FOR MEDIATORS PARTICIPATING IN DRUG DEPENDENCY PREVENTION PROGRAMS (SPAIN)

DATE AND PLACE 

Madrid, 28 and 29 November 2000

BENEFICIARIES

Mediators/educators involved in drug dependency prevention programs with Gypsy children and youth

NUMBER OF PARTICIPANTS

17 people from 14 entities

 

INTRODUCTION

This training meeting forms part of the actions that the ASGG carries out on an annual basis to train mediators/educators involved in prevention programs with Gypsy children and youth throughout the whole of Spain.

The meeting objective were:

 

WORK AGENDA

28 November 2000

16.30 – 17.00: Registration and presentation
17.00 – 18.30: CRITERIA Evaluators:

Conclusions 99/00 external evaluation
Evaluation criteria for the 2000/2001 program (Annex 1)

18.30 – 18.45: Coffee break
18.45 – 20.00: Operational criteria and working tools for the 2000/2001 Project

29 November 2000

10.00 – 14.00: Training workshop in family intervention

 

2.2 TRAINING COURSES FOR FIELD PROFESSIONALS ON HEALTH CARE INTERVENTION METHODS WITH THE GYPSY POPULATION (SPAIN)

Courses held: Training was done by the ASGG on health promotion and the prevention of drug dependency through the following courses:

Beneficiaries: field professionals working with the Gypsy population through public institutions or NGOs. A
 total of 215 people attended from all of Spain.

The following material was presented at the sessions:

 

This training was co-financed, supported and disseminated by the Spanish Labour and Social Affairs Ministry

 

2.3 TRAINING COURSE: "SOCIAL INTERVENTION, DRUG DEPENDENCY AND COMMUNITY HEALTH" (SPAIN)

 

 DATE AND PLACE

Madrid 14-16 March 2001. Hotel Praga.

BENEFICIARIES

Social intervention mediators, educators and field professionals who, from within their associations, are developing or are going to develop actions related to intervention in the area of health and drug dependency.

NUMBER OF PARTICIPANTS

47

 

Introduction

This course was born in the wake of a need to train a range of different intervention agents in order that efficient drug dependency prevention and care, HIV/AIDS efforts and work in the field of general health be carried out by local entities. In order to accomplish this the unification of criteria, experience sharing and the provision of tools to those that are in contact with this reality through local organisations is fundamental. It is also very important to train mediators to analyse their own professional efforts from a critical perspective.

 

GENERAL COURSE OBJECTIVES

 

STRUCTURE OF THE COURSE/PROGRAM

Course content structure was as follows:

14 march

16.30: Participant registration and distribution of documentation.

17.00: Opening session:

18.00: Key-note speech: Intervention in Community Health.

Blanca Tejero. Clinical Psychologist, Training specialist in health care issues.

19.00: Debate.

 

15 March

09.30: ROUND TABLE DISCUSSION: FAMILY HEALTH


11.00: Debate.

11.30: Break.

12.00: ROUND TABLE DISCUSSION: SPECIFIC HEALTH PROBLEMS.

Drug dependency: the health care response
Stress and psychosomatic problems.

13.30: Debate.

14.00: Lunch.

16,30: SIMULTANEOUS WORKSHOPS:

 

16 March

09.30: Intervention: How to involve the community in the promotion of health.

Concepción López Casares. Psychologist specialising in community intervention.

11.00: Debate.

11.30: Break.

12.00: Reading of the conclusions.

12,30: Closing act: Mr. Carlos Alvarez Vara. Responsible for external relations for the Autonomous Community of Madrid’s Anti-drug Agency.

 

METHODOLOGY

The methodology of the course was active and was based on participation. It built upon the know-how that the participants brought to the course and provided key input so that the learning took place from the practical perspective of their professional reality. Much emphasis was also given to the sharing of intervention experiences and to their analysis for the benefit of the rest of the group.

It should be mentioned that, given the group’s heterogeneity (some of the mediators are already developing prevention program activities, others are implementing actions in other health programs and there were also people from other professional backgrounds like ATS (physician’s assistant), social workers, psychologists, etc.) this methodology was instrumental in involving participants in the task thus achieving what was denominated "intercultural learning" in the course evaluation questionnaires. The heterogeneity of the participants’ backgrounds and the participatory and dynamic methodology allowed the technical experts from the different entities represented to acquire significant knowledge with respect to Gypsy culture and also allowed mediators to incorporate very valuable learning in the area of methodology and community intervention strategies.

 

CONCLUSIONS OF THE TRAINING COURSE

The most significant conclusions were:

Aspects that could be improved

Aspects that could be improved


Positive aspects

 

On balance the course was very positive and the objectives envisioned were met. This type of training initiative is particularly useful when it comes to gaining awareness of other experiences, unifying intervention criteria and then providing technical support and advice in situ for the health care mediators and promoting and fostering the subsequent implementation of initiatives. Contact has been maintained throughout the whole year with the different projects, providing support through specific training and consultation on intervention.


2.4- TRAINING OF PROFESSIONALS IN INTERVENTION WITH THE GYPSY COMMUNITY IN HEALTH CARE AND DRUG DEPENDENCY (GREECE)

 

Date: 24–27 October 2000

Venue: KEPIT classroom facilities (Athens–Greece)

Beneficiaries: 25 field professionals working with the Gypsy population through public institutions (town halls) or through NGOs.

 

This training course is part of a broader program for field professional training for social intervention and received the approval of the Greek Ministry of Labour. The module presented on intervention work with the Gypsy population dealt with the following issues:

 

 

2.5- IN SITU TRAINING VISITS IN SOCIAL INTERVENTION AS WELL AS IN THE FIELD OF HEALTH CARE AND DRUG DEPENDENCY WITH THE GYPSY POPULATION (GREECE)

DATE AND PLACE

Athens, 26 - 28 April 2001

BENEFICIARIES

Mediators/educators working in drug dependency prevention programs and health care intervention in different European countries

NUMBER OF PARTICIPANTS

15 mediators from 3 countries

The objectives of this in situ mediator training and exchange meeting were:

Overall it was an active learning meeting, highly praised by the mediators with regard to knowledge gained from the different ways of working and useful in reinforcing the work that has been done.

 

2.6- MEDIATOR TRAINING SESSIONS PREPARING THEM FOR INTERVENTION ACTIONS IN THE AREA OF DRUG DEPENDENCY AND HEALTH PROMOTION (GREECE)

 

In the framework of the Sastipen Network and of intervention projects financed by national public entities, EFXINI POLI has developed training sessions for Gypsy mediators that work with small groups on health care issues. The objective of this action was to train those mediators that work on a professional basis in the area of health care with a view to making their work more fruitful. Twenty-five mediators have been trained and this activity was developed thanks to the involvement of visiting health care professionals (public health care workers from different Greek cities).

 

2.7- MEDIATOR AND FIELD PROFESSIONAL TRAINING SESSIONS (PORTUGAL)

Nine working sessions were held on different aspects related to intervention with the Gypsy population. The SINA group in Portugal (national working group created within the framework of the Sastipen Network) has had a very important empowering effect on the treatment of problems within Portugal’s Gypsy population. In this sense, the work has extended beyond drug dependency intervention and has dealt with other relevant issues such as housing, education, employment, etc.

Training sessions were held on the following dates:

 

The methodology of these training sessions is participatory; a framework document was presented on each one of the subjects dealt with and served as a basis for debate and the drafting of a consensus document.

A summary of all of this information will be published in the first issue of the magazine "Ciganos.pt" which will be edited within the framework of the next project.

 

2.8- TRAINING SEMINAR FOR MEDIATORS AND EDUCATORS WORKING IN THE AREA OF DRUG DEPENDENCY (ITALY)

 

Held in Passo Mendola the second week of September 2000.

A group of 50 operators working in drug dependency participated.

The training was carried out within the framework of the training that the CNCA does with its workers. Specific attention was paid to the issue of the Gypsy population and immigration (specific issue affecting minorities residing in Italy and which requires specific intervention methodology).

These sessions are ongoing since immigration is a relevant issue in Italy both from a political perspective as well as from the perspective of social intervention and drug dependency work.

 

3– NATIONAL WORKING GROUPS

The working groups are developing in a consolidated way in Portugal (GRUPO SINA), France (Commission Santé UNISAT), Italy (the CNCA working group on Gypsies), Spain (inter-institutional working group on health and drug dependency) and Greece.

Periodical meetings are held in all of these countries and national coordination, planning, action development and Sastipen Network representation and dissemination actions are implemented in all of them.

SPAIN

The Spanish working group is comprised of professionals from different entities (Gypsy and non-Gypsy, public and private) working in the area of drug dependency. Professionals from 4 public health care centres, from regional, local and national public entities and from 14 Gypsy associations as well as persons responsible in the ASGG for the health area and the Sastipen Network have participated.

The principal thrust of the actions developed by the working group was:


The meetings were held approximately on a monthly basis.

PORTUGAL

Ever since 1996 and in the framework of the Sastipen Network, the SINA Group has been the national organisation serving as a point of reference for the Network and for intervention with Gypsies in Portugal in general. The following is a partial list of its activities:

The following entities are members of the working group:


ITALY

Periodic work meetings have been held by the different CNCA groups that work with the Gypsy population (Milan, Rome, Florence, Pescara, Palermo).

These sessions were mostly for the purpose of sharing, debate on adapted methodology and for the training of intervention workers (operators, mediators).

Most of the meetings were held during the months of October and November 2000 although less systematic meetings were held throughout the entire period.


GREECE

The 6 national working group meetings were held in those cities which are home to the greatest number of Gypsies.

These cities were Komotini (Thraki prefecture), Volos (Thessalia prefecture) and Salonica (central Macedonia).

The objective of these meetings was to share experiences and come up with a definition for a common intervention methodology.

Within the framework of these meetings, particular attention was paid to the importance of adapting specially tailored intervention materials and their use by the mediators.


FRANCE

The French working group was developed within the framework of the "Commission Santé".


4– INTERNATIONAL SEMINAR IN OPORTO

 DATE AND PLACE

Oporto, (Porto Palacio hotel) 10 - 11 May 2001

BENEFICIARIES

Field professionals from different entities (public and private) that work with the Gypsy population. Field professionals and members of Gypsy associations and entities. People working with the Gypsy population in different European countries.

NUMBER OF PARTICIPANTS

250

 

Assessment of the meeting

The overall assessment of the workshops was extremely positive due to the quality of the presentations and the ensuing debate as well as to the number of participants (250) and their diversity: technical experts and leaders from public and private entities (state ministries, schools, town halls, health centres, NGOs, …), projects involved in the fight against poverty and Gypsy associations.

There can be no doubt that the workshops achieved the objectives set within the framework of the Sastipen Network which were to:

The institutional involvement of the Portuguese public administrations was very relevant. The participation of the High Commissioner for Immigration and Ethnic Minorities both in the presentation as well as throughout the rest of the Workshop was very significant because of the attention that it drew to the meeting and his involvement in the work. Another fact that should be highlighted was the presentation of the provisional conclusions of the research on AIDS and Gypsies that the ASGG is carrying out in partnership with the Universidad Complutense of Madrid.

A summary of the Workshop’s most relevant conclusions as well as the materials and documents produced is included in the Annexes.

 

5– ACTIVITIES DESIGNED TO PROVIDE A CLEARER PICTURE OF THE STATUS OF THE GYPSY POPULATION WITH RESPECT TO HEALTH, DRUG DEPENDENCY AND OTHER ASSOCIATED PROBLEMS

 

5.1- NFORMATION SYSTEM ON THE EVOLUTION OF THE SITUATION OF EUROPE’S GYPSY POPULATION AS REGARDS HEALTH, DRUG DEPENDENCY AND OTHER ASSOCIATED PROBLEMS

 

The initial objective of this work was to create a system allowing for the observation, diagnosis and drafting of action recommendations leading to an increased knowledge of the status of the Gypsy population in the different countries comprising the Sastipen Network and later in the remainder of the European Community countries.

The enlargement of the European Union to include Central and Eastern European countries with high percentages of Gypsy population that find themselves in a real or potential situation of social exclusion, converts this type of activity into an essential tool needed to assess the situation and to implement public policies that take the needs of this segment of the population into consideration. Furthermore, health status is a fundamental indicator of a group’s degree of social incorporation within their society.

Methodology

The collaboration of an external entity specialised in social intervention (CRITERIA Evaluation Group) that is developing the system is being called upon for the implementation of this activity due to the need for specific technical know-how. It will then be applied in the Network’s partner countries through human resource teams comprised of the standing working groups and afterwards in the rest of the European Union countries.

The process was designed in three phases:

I. Definition of objectives, instrument design, key analysis indicators.

The projected result of this first phase is the drafting of a report that lists the indicators agreed upon by all of the partners and includes the application questionnaire for each one of the countries.

At the same time a search was made for secondary sources that, through publications of other research and articles published in medical journals, would help to provide a clearer picture of the health situation in which Europe’s Gypsy population finds itself.

II. Implementation of the analysis and information system through the standing working groups set up in each country.

Time frame established for execution was between February and April 2000.

III. Drafting and publication of an annual report that includes all the national reports filed by each partner country and an overall European report including a proposal of recommendations for intervention in this field. The annual report has already been completed.


Conclusions reached after the first phase of implementation

The most relevant conclusions of this first report are as follows:

 

In order to continue with the development of the information system we have set up the following actions:

 

 

With these initiatives we continue to develop the system and, thanks to the Delphi studies, a global vision will be obtained with regard to the situation and the health status of the Gypsy people in each one of the countries. We also give great importance to initiating the establishment of information collection systems even if this is through the collection of health data on Gypsies in existing systems, for example through drug centres, health centres or neighbourhood primary care facilities. It is also important to simultaneously implement the collection of health data through the programs being carried out by participating organisations or others who may want to participate.

 

5.2 – QUALITATIVE RESEARCH INTO THE GYPSY POPULATION’S AWARENESS, ATTITUDES AND BEHAVIOURS WITH REGARD TO HIV/AIDS

 

This research project is being carried out in collaboration with the Social Anthropology Department of the Faculty of Political Science and Sociology at the Universidad Complutense of Madrid and the ASGG. It is being funded by the Foundation for Research and Prevention of AIDS in Spain.

This particular research project has a dual objective: on the one hand to gain insight into the effects that the HIV/AIDS phenomenon is having on the Gypsy population; what cultural mechanisms it uses to deal with this issue; how social networks are constructed in response to the disease, etc. and on the other hand to use these results to improve the intervention that the Asociación Secretariado General Gitano (ASGG) and the Sastipen Network has been implementing since 1996 with the support of different institutions (National AIDS Plan, the Health Department of the Autonomous Community of Madrid, the National Drug Plan, the EU (DG SANCO), etc.

The need to become more aware of just what is happening in the Gypsy community in relation with HIV/AIDS so as to be able to apply it to the intervention, makes this project one of Research-Action the results of which will be used as working tools for the different programs. It was, in fact, intervention itself that set the ground work and helped this work along in its development process.

The ASGG’s scope of action (national), its implantation in the different Autonomous Communities and its role as the territorial coordinator of the actions along with its participation in European networks and health projects, guarantee both the impact and the transferability of the results.

In its very conception, this work attempts to be the first step in a process that will shed light on the reality facing the Gypsy community in relation with HIV/AIDS. This initial work is developed using qualitative methodology that will be complemented in the future with epidemiological research that will undoubtedly be needed to carry out the intervention.

Work objectives


Methodology

As was mentioned above, the methodology chosen for this research is qualitative and forms part of the ethnographic methodology. The techniques used are: in-depth interviews with key informers, broadly representative discussion groups and life histories in which attention is paid to specificity through generalities. Given the objectives of the study which focus on the analysis of awareness, attitudes and practices, it is our view that qualitative techniques have significant advantages over quantitative ones. Furthermore, the cultural characteristics of the Gypsy people and their distrust of the non-Gypsy world make the use of this methodology particularly relevant. It should be pointed out for the training of the researchers that this work is multi-disciplinary: Social Anthropology, Sociology, Social Work.

 

6– UPDATING THE DATA BANK ON INITIATIVES IMPLEMENTED WITH GYPSIES

 

6.1 - DATA BANK ON PREVENTION INITIATIVES AND DRUG DEPENDENCY AND HIV/AIDS INTERVENTION WITHIN EUROPE’S GYPSY POPULATION

 

The existing data base (Access) was updated in the case of these organisations and contacts have been widened basically towards the Eastern and Central European countries: Romania, Hungary, Slovakia, the Czech Republic, Germany...

 

Objectives

 

 

Methodology and Actions implemented

 

The Project’s collaborating organisations in each country provide data regarding Gypsy organisations, drug centres, social services and other institutions.

The answers received are used to broaden the data base and the directory which will be continuously updated in the future.

A special effort was made to include organisations that work with Gypsies in Eastern European countries given the size of the Gypsy population there and the fact that some of these countries may soon form part of the European Union.

 

7– THE ROMANO SASTIPEN DRUG DEPENDENCY PREVENTION PROGRAM AIMED AT GYPSY YOUTH

 

SPAIN

 

This action is the consolidation of activities developed within the framework of the previously funded project in the different Gypsy associations and the provision of a framework and a series of instruments that can be generally applied to prevention work with the Gypsy community.

The Program continues to be organised around the "Prevention Workshops for Gypsy Youth" which have been designed by the Asociación Secretariado General Gitano in collaboration with external experts and adapted and presented to the Gypsy associations within the framework of the Program financed by the Government Delegation in 1997.

 

Methodology:

 

Technical material needed:

The purpose of this work is basically to consolidate the process already initiated, to strengthen the Association’s role as a socio-educational reference point from which to carry out prevention work and to guarantee the progressive involvement of local and regional governments. Furthermore, the participants are monitored in their scholastic and family environments through the different programs thus reinforcing access and maintenance through training itineraries and through contact with the educational centres they attend.

 

In this sense the idea is to consolidate the relationship already initiated with the schools which in many cases means carrying out prevention activities in these learning centres themselves and implementing awareness and training actions with the teaching staff.

Intervention program with families (see annex)


This action, complementary to the one described above, is the implementation of a "School for Gypsy Families."

The School for Families is a 10-session course which meets on a weekly basis for two hours and covers the following points:

    1. Awareness and understanding of the drug problem.
    2. Understanding the adolescent mentality.
    3. Families can do prevention work.
    1. Our own cultural values protect us: Protection factors against drug abuse.
    2. Family based prevention strategies.
    1. Some things that everyone should know about drug dependency.
    1. What can we do if someone from our family has a drug problem?


Evaluation: Very positive feedback has been received because the activity has proven to be very motivating for Gypsy families that have found a favourable climate for sharing and training as well as for learning and reinforcing the different prevention messages. This activity has provided training for one of the most important prevention agents: the family.

 

OTHER COUNTRIES


Greece

In Greece, the adaptation and publication of the "Prevention Workshops for Gypsy Youth" marked the start of intervention work with Gypsy minors and youth with respect to drug abuse prevention and health intervention.

The full dimensions of the project will be developed during the course of 2001 and 2002

 

8– PRODUCTION AND DISSEMINATION OF MATERIALS

 

8.1 – Production and update of the WEB page

The following material has been included in the WEB page:

The reports produced by the Network have been included in this issue (except in English which is being translated).

 

8.2- Translation into Greek, adaptation and publication of the book: "Taking Action in the Gypsy Community"

The book, "Taking Action in the Gypsy Community" was translated into Greek and published (see annex) and has been distributed to 150 public and private Greek organisations that work in the field of drug abuse and / or with the Gypsy population.

The adaptation, translation and publication of materials in the different countries is an activity which meets the objective of transferring experiences and good practices, of working in partnership with the different European organisations that comprise the Sastipen Network and of adapting methodology in mainstream intervention to specific population groups.

 

8.3 – Publication of the "Sastipen" Newsletter

 

A new issue of the "Sastipen" Newsletter has been published with summary information on the most relevant actions and accomplishments that have taken place this year.

This document is published in five languages and distributed throughout 17 European countries.

 

8.4 – Adaptation and translation into Greek of the "Prevention Workshops for Gypsy Youth"

The document has been adapted, translated, published and distributed to 150 social, public and private entities that work with Gypsy people.

As was the case with the book "Taking Action in the Gypsy Community", the adaptation, translation and publication of materials (in this case the Workshops…) in the different countries is an activity that meets the objective of transferring experiences and good practices, of working in partnership with the different European organisations that comprise the Sastipen Network and of adapting methodology in mainstream intervention to specific population groups. In this sense the Sastipen Network is promoting advancement in the transfer and exchange of methodologies with the Gypsy population throughout the whole of Europe.

As was mentioned above, this publication has allowed for the implementation of a prevention program aimed at Gypsy youth in Greece through the direct intervention work being carried out by Efxini Poli.


8.5–
Other editing of materials and participation in publications

 

There has been participation in a number of different publications and documents (See annexes)

 

9– OTHER ACTIONS AIMED AT ESTABLISHING AND DISSEMINATING THE NETWORK

 

On 29-30 June and 1 July 2000, the 3TE organised the 8th edition of its Summer University in Palma de Mallorca entitled "Cultures and Dependency." The members of the Sastipen Network Steering Committee participated in those workshops and also made a technical presentation entitled: The Gypsy population and drug abuse: needs, priorities and intervention strategies.

The program and the presentation appear in the annexes.


Participation in a number of different European intervention and promotion projects aimed at the Gypsy population

The ASGG in Spain, the REAPN in Portugal and the 3TE (UK) participated together with other European organisations in the research project entitled "Mapping Available Information on Social Exclusion and Drugs, Focusing on "Minorities" across 15 EU Member States," financed by the EMCDDA and promoted by the T3E (UK).

The drafting of the Project’s final report was completed in December 2000.

Project: "Ser criança" promoted by the Olho Vivo association in Braga and funded by the Portuguese Labour and Solidarity Ministry.

 

9.2 – Technical assistance provided to European organisations working with the Gypsy population in the area of health and drug abuse

 

Both the Network’s Technical Secretariat as well as the headquarters of the different partner countries have answered approximately 3,000 requests made by entities and private individuals regarding the object of the Sastipen Network. Most of these request were made via e-mail after having consulted the WEB page.

Other communication channels were: the distribution of Sastipen Network publications, the publication of documents on intervention methodologies with Gypsies, Workshops, Meetings, Seminars, etc.

The greatest number of demands were for specially adapted methodology and materials, specific documentation and help in the development of projects. Requests were also received from the media regarding the purpose of this Network as well as other specialised networks or projects.


9.3 – O
ther actions aimed at establishing and disseminating the Network

The following activities were engaged in:

TECHNICAL ASSISTANCE PROJECT IN SLOVAKIA

In 1999 in Slovakia the ASGG initiated a new line of work for the Association related to cooperation with Eastern European countries, future European Community members and, as is the case with Spain, countries with a significant Gypsy population. In the year 2001 work will continue in Slovakia and will expand to include Hungary and the Czech Republic as well. Although some of the actions are beyond the bounds of this project’s period of execution, the results that the Sastipen Network’s intervention has had there are reflected both in the development of activities as well as in the preliminary preparation and consultation stages.


The project entitled: "Technical Assistance for policies concerning Gypsies in Slovakia and the Transfer of Good Practices" is funded by the Spanish Agency for International Cooperation (Agencia Española de Cooperación Internacional – AECI) and is carried out in collaboration with the Slovakian Office of the Deputy Prime Minister for Human Rights, Minorities and Regional Development.


The initiatives developed during the course of the first project (1999-2000) set the stage for closer collaboration between the two countries on a subject that is becoming ever more relevant in Europe – that of the social integration of the Gypsy minority; a minority that, in the case of Slovakia, accounts for over 8% of the country’s total population. That is why with this second project (2000-2001) the proposal was to strengthen these lines of action that have been implemented to date while delving deeper into the training of field professionals and working for greater dissemination while at the same time concentrating efforts in actions related to the transfer of know-how that tend to have a multiplying effect.


A third axis of the project is that of facilitating contact with and the incorporation of Slovakian entities into the arena of the European Union’s social policies, fostering connections with the networks which the ASGG participates in and which operate within the framework of the EU thus allowing for participation in the development of trans-national programs. The fact is that in some of the projects that the ASGG has presented recently, Slovakian entities are already involved as project partners (SOCRATES, European Commission Equal Opportunities Framework Program). Slovakian entities working in the health field have also participated in activities being developed by the Sastipen Network over the past year. These entities have incorporated their experiences with Gypsies in meetings and seminars and have benefited from the experience and contacts that the Network has to offer them.

As part of the activities envisioned within the framework of the project for the year 2001 and within the scope of the transfer of good practices, two Training Seminars on Good Practices with Gypsies in Spain and in Slovakia were held on 14-15 and on 16-17 May in two different cities in Slovakia. The first was held in Kosice in the eastern part of the country and the second in Rimavská Sobota in the south of Slovakia, the two areas where the greatest concentration of Gypsies can be found in that country.


The seminars were aimed at those responsible for local and regional projects related to Gypsies and the objective was to provide examples of good practices of work with Gypsies in Spain, to become familiar with the Slovakian situation and to share experiences. Both seminars were practical in nature and were based on case studies of real intervention with Gypsies with the presentation of concrete experiences and discussion on subjects related to the promotion of the Gypsy community.


Five work areas were selected for the debate: education, housing, community development, employment and women / health. For each one of these areas a Spanish and Slovakian expert were on hand and presented their work and experience leaving time for participation and debate among all of the participants. At the conclusion of the seminar, the participants evaluated the content and the seminar’s most relevant aspects and analysed which was most likely to be successfully applied in their entity or municipality. Conclusions were then drafted.


In the case of both seminars, participation was over the expected 25 people which meant that a wide range of social agents working with the Gypsy population were represented: local and regional governments, employment offices and health centres, schools, social entities, Gypsy associations, etc. The Gypsy community was also very well represented, especially in the case of women and young people, a fact which bears witness to the great number of associations that comprise the Gypsy associative movement in Slovakia and the protagonism that these two population groups are acquiring. In the case of the ASGG, five workers went to Slovakia to participate in the seminars and to make their good practices presentation. There were also representatives from the Slovakian Government’s Office of the Plenipotentiary for Gypsy Affairs who also took part in the organisation and selection of seminar participants.


The meeting was an opportunity to compare action taken with Gypsies in the two countries and to enter into debate on the different ways to focus the work. Spain provided the added value of its experience, know-how and good practices given that it has more experience in the social promotion of Gypsies and Slovakia showed its interest in recognising the Gypsy community as a minority group, in its participation in politics and in the defence of its cultural identity.


Also within the framework of actions related to the transfer of good practices, four study visits were organised between 20 May and 17 June for members of the Slovakian administration who worked for one week each in Madrid. Four different fields of work were selected: education, health, employment and community development, one for each participant and for each week of work.


Those who participated in the visits, medium level officials within the Slovakian public administration, had the opportunity to make direct contact and familiarise themselves with the functioning of programs that the Spanish government focuses on the Gypsy population and the different levels of government (national, regional and local, the relations that the different administrations have established with social entities or associations that develop the projects, contact with the beneficiaries, etc. In addition to ASGG activities and projects, the program included a visit to other associations that also work with Gypsies or with other underprivileged groups.


The second part of the project ends in November and two actions are planned that are yet to be implemented. On the one hand there is a publication with orientation and directives for intervention with Gypsies which came about as a result of the conclusions reached at the training seminars, the study visits and our work and experience both in Spain and in Slovakia. It will be published in Spanish, English and Slovakian and will then be widely distributed to government administrations, social entities and institutions. And finally a Round Table Discussion will be organised in Bratislava in November on social policies affecting Gypsies. A publication will be presented on that occasion and will be aimed at key policy makers, high-ranking government officials and representatives of entities that finance projects related to the Gypsy people. This action is also within the framework of the objective to develop a series of support and technical assistance actions aimed at Slovakian institutions that work with Gypsies or take decisions related to them with a view to strengthening and orienting social policies in this area. The Round Table Discussion will allow for the creation of a forum for discussion and debate on intervention strategies with the Gypsy population in the two countries.

 

 

3. Assessment and Conclusions

/ Data collected and generated

 

3.1 - Progress made in the Project, results, effects, impact:


As a result of the work that we are doing through this Project on the phenomenon of drugs and AIDS in the Gypsy community, we can point to a series of advances made with respect to the initial situation and some difficulties and limitations:

 


Among the challenges that lie ahead in this project we can include the implementation of those actions that are yet to be developed or those that are still in the initial stages of development or those for which there is a high demand but especially those that imply taking steps towards the achievement of the defined objectives. It would be profitable to continue to delve further into the following aspects: